Consumer involvement

Consumers in health are users, or potential uses of the health care system, including their families, carers and support people. Increasingly consumers provide input into health care delivery through their involvement in planning and policy development, service delivery, community feedback and volunteer activities.

The Cochrane Breast Cancer Group (CBCG) has many consumer members and they participate equally across the major activities of the group. Participation by consumers is considered an important measure of the success of the group and the CBCG's ability to incorporate consumer participation is included as a routine measurable outcome. The group works closely with a number of breast cancer specific organisations and advocacy groups in Australia and other countries.

Consumer participation can either be through a breast cancer advocacy group or as an individual. Consumers can:

  • Conduct or participate with a team to address a question for a systematic review
  • Provide consumer specific input via the peer review of protocols and reviews
  • Provide representation on the Editorial Committee
  • Participate in consumer specific projects and working parties
  • Conduct handsearching of relevant journals to identify randomised trials
  • Translate non-English language journal articles
  • Disseminate the results of completed Cochrane reviews
  • Identify additional sources of support
  • Encourage health care practitioners to practice evidence-based medicine
  • Interpret scientific jargon into easily understandable information that other consumers can readily access
  • Participate in special projects undertaken by the CBCG
  • Providing feedback about published Cochrane reviews through the Cochrane Library's comments and criticisms system

    If you would like to participate as a consumer representative, complete a membership form and contact the editorial base Cochrane@ctc.usyd.edu.au

    In addition you may wish to visit the Cochrane Consumer network to find out more about the roles of consumers within The Cochrane Collaboration

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