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Consumer involvement
Consumers in health are users, or potential
uses of the health care system, including their families, carers
and support people. Increasingly consumers provide input into health
care delivery through their involvement in planning and policy development,
service delivery, community feedback and volunteer activities.
The Cochrane Breast Cancer Group (CBCG) has
many consumer members and they participate equally across the major
activities of the group. Participation by consumers is considered
an important measure of the success of the group and the CBCG's
ability to incorporate consumer participation is included as a routine
measurable outcome. The group works closely with a number of breast
cancer specific organisations
and advocacy groups in Australia and other countries.
Consumer participation can either be
through a breast cancer advocacy group or as an individual. Consumers
can:
Conduct or participate with a team
to address a question for a systematic review
Provide consumer specific input via
the peer review of protocols and reviews
Provide representation on the Editorial
Committee
Participate in consumer specific projects
and working parties
Conduct handsearching of relevant
journals to identify randomised trials
Translate non-English language journal
articles
Disseminate the results of completed
Cochrane reviews
Identify additional sources of support
Encourage health care practitioners
to practice evidence-based medicine
Interpret scientific jargon into easily
understandable information that other consumers can readily access
Participate in special projects undertaken
by the CBCG
Providing feedback about published
Cochrane reviews through the Cochrane Library's comments and criticisms
system
If you would like to participate as a consumer
representative, complete a membership
form and contact the editorial base Cochrane@ctc.usyd.edu.au
In addition you may wish to visit
the Cochrane
Consumer network to find out more about the roles of consumers
within The Cochrane Collaboration
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